Feel Good Friday: Metcalfe County Freshman shows strength beyond his challenges with SHINE Syndrome

EDMONTON, Ky. (WNKY) – For Charlie Hawkins, a good day might mean seeing a friend in the hallway, getting a high-five at lunch or cheering alongside his classmates.

The Metcalfe County freshman has become a familiar face around school, known for his outgoing personality and the joy he brings to those around him.

But his journey to get here hasn’t been easy.

Hawkins began experiencing seizures at age 6. Years later, at age 13, he was diagnosed with DLG4, also known as SHINE Syndrome, a rare genetic condition that can affect sleep, movement, speech and development.

Dr. Chris Barton, a child neurologist with Norton Children’s Neuroscience Institute, says the condition can bring significant challenges for patients and their families.

Still, Charlie’s parents, Amy and David Hawkins, say they’ve watched him continue to overcome obstacles and reach new milestones.

“Everything he’s overcome,” Amy Hawkins said. “Look where he is now.”

His father says Charlie’s determination and outlook on life stand out.

“He knows that he has this disease, but he lives life to the fullest,” David Hawkins said. “He loves going to church. He loves praising God.”

Charlie has spent four years participating in the Barren County Flames Special Olympics program. He’s also found a place cheering alongside his classmates at Metcalfe County.

His parents say the little moments, like Charlie coming home excited about seeing his friends, are the ones they cherish most.

Charlie was recently recognized during a Metcalfe County football game and WKU football game, receiving a Hilltoppers jersey in celebration of his perseverance.